In a video on Good Morning America, Bruce Willis’s wife, Emma Heming Willis, discusses the challenges of dealing with his diagnosis of Aphasia and Frontal Temporal Lobe Dementia. In the blurb, she discusses the challenges of being a family support person for someone struggling with these diseases, as well as the importance of building community and getting support.
One of the things she mentions is how transparency has helped her family. With a loved one in the spotlight, it can be even more challenging to navigate a new world after a diagnosis of a cognitive condition. People feel that they are struggling in their families. A protective instinct may make you want to hide a diagnosis from people for fear that they will judge your family member for a medical condition.
We have found that, even in very private families, openness really helps the family adjust to the new reality. First, it helps the patient access the best types of care and caregiving services. For many people with dementia, that may mean memory care services like we offer at Regency Memory Care. For others, it may mean aging in place. With a celebrity like Willis, the assumption is that they have sufficient funds to age in place with private caretakers safely. That is not the reality for many people, but living in a memory care facility is not the hardship many people assume. We create a bright, vibrant community that meets your loved one’s needs without ever forgetting their individuality and humanity.
Second, openness is beneficial for families. With an honest and open discussion of the condition and its challenges, families can find support, helpful tips, and more. Dementia is no longer something confined to the shadows or whispers—it is an everyday reality for many families.